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Topic Review (Newest First)
10-20-2008 09:45 PM
Rubigoddess Update on Erick....

He went in for his first surgery at 7:30 am today. The surgery was scheduled to take 7 hours. At 9:15 the parents got word that there was some sort of build up (I cant remember the name) in his system. The dr's had to shut down some organs in order to save his heart and lungs.

He went on bypass around 9:30 this AM. Around 5pm the surgeons were done. It will take a few days to see if the shutting down of organs caused any permanent damage.

So, Erick will be paralyzed for the next 5 days. After a cardiac surgery, they cannot close the chest right away. I dont know why, but its the case. So, the docs are paralyzing him and covering his open chest with a sterile cover for the next five days.

GOD....I cant even imagine going through this. I'm worried sick and he's not even my kid.
10-19-2008 04:21 PM
Dare2BSquare It's really amazing what can be done for these children today. Our oldest (30) was born with transposition. At that time there were only about 5 surgeons in the country that could do the procedure she needed. One of them happened to be in Little Rock. We have been involved over the years with support groups and as I said, my wife has been working in the cardiovascular ICU at Children's for the last couple of years because of the fact that we wanted to give back to others that are now experiencing what we went through as young parents 30 years ago.

You might also check with March of Dimes. They helped us out back in the day.
10-19-2008 12:48 PM
Rubigoddess
Quote:
Originally Posted by Dare2BSquare View Post
My wife works with families like this everyday. Many parents end up living in the hospital waiting rooms or wherever they can find to sleep. Check into Ronald McDonald House and other charities in the area of the hospital. Most major medical centers have some type of help for these families. Including gas vouchers and food vouchers to help them get through the long hospital stays.

A good long talk with a social worker at the hospital should go a long way to help them find out what's available.
All of this has been done. The only thing the hospital is giving them is a 50% discount on a nearby hotel room and food vouchers for the cafeteria.
10-18-2008 06:33 PM
Dare2BSquare My wife works with families like this everyday. Many parents end up living in the hospital waiting rooms or wherever they can find to sleep. Check into Ronald McDonald House and other charities in the area of the hospital. Most major medical centers have some type of help for these families. Including gas vouchers and food vouchers to help them get through the long hospital stays.

A good long talk with a social worker at the hospital should go a long way to help them find out what's available.
10-18-2008 11:54 AM
Rubigoddess
Update

Please visit Erick's Broken Heart and make sure to sign the guestbook.

Also, if you could talk to everyone you know and tell them about this situation, that would be huge! Nothing can compare to word of mouth.

I've written a press release and sent it to all the journalists and reporters I know. Its included below.

Erick was born around 5:30 last night. He weighed in at 7lbs 1oz and is 19.5" long. On the outside he looks normal and healthy (not too mention cute!)



After he was born, the dr's whisked him into a sterile room and did an ultrasound on his heart. The diagnosis is that he does NOT have Hypoplastic Left Heart Syndrome......he has Hypoplastic RIGHT Heart Syndrome.

This doesn't change the fact that he'll need his first surgery on monday or that he'll need at least 5 surgeries before he's five. What it does change is that his left ventrical and aorta are just fine, infact, super fine. They grew very large in order to pump the blood needed.

The more Chris tells me about their adventure, the more I am amazed that little Erick made it to his birthday. After the ultrasound showed heart defects, they had to do a special test that will test for the top 5 abnormalities in a baby.

Long story short, because there were only two veins in the umbilical cord taking blood to Erick, the chances that he was going to either be 1) miscarried 2) severely mentally retarded were VERY high. So high the special needs OB/GYN wanted them to schedule a late term abortion that same day.

They said screw that and paid for the test. The results were that he 99.9% did NOT have any of the top 5 abnormalities and a 99.999% chance that his chromosomes were normal, minus the heart. There was a huge chance that the liver and the kidneys would fail, etc.

It is just simply amazing that he's here and he's healthy (besides his heart).
10-18-2008 11:52 AM
Rubigoddess
Baby with a Broken Heart

I'm posting this everywhere I know because these people are REALLY close to me and they need some serious help! I know there are so many scams out there like this, but please, rest assure that Chris and Kris are friends of mine and this is a REAL issue.

Chris and Kris found out that their 3rd child (first boy) has hypoplastic left heart syndrome. Laymans terms, the left ventrical is severely under and maldeformed.

Erick was born on Friday (the 17th of October) and he will have his first surgery on Monday, the 20th when he is only three days old. After his first surgery, the doctors will not be able to close his chest, therefore will temporarily paralyze the baby and leave his chest open for 5 days.

They do have insurance (thank God) but there are many unexpected costs that they are going to incure. Erick will need another surgery between the ages of 4 and 6 months. Kris (the mom) would love to be able to stay with Erick at least through his second surgery and that is not possible without help from the public.

My friend, Jake has started a website for Erick and his parents. Please visit Erick's Broken Heart and read about the situation.

Thank you everyone!

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